Research
Research Team Members
Research Team Members
Dr. Batthish is a is a pediatric rheumatologist and researcher at McMaster University who focuses on improving education, skill building and experiences for youth with rheumatic disease as they prepare to transfer from pediatric rheumatology care. Dr. Beattie brings expertise in research methods and patient and family engagement, helping people with lived experiences as patients or caregivers become active partners in research and care. Watch this interview to learn more about patient and family engagement in rheumatology research.
A key member of the research team is Matthew Sholdice. Diagnosed at the age of three with Juvenile Idiopathic Arthritis, Matthew brings both a patient and a youth perspective to the team and the work that they do. Since attending McMaster University, he partnered with Dr. Batthish and Dr. Beattie to share his experiences of transitioning from pediatric to adult care. He is very knowledgeable about the needs of youth and their parents and is well connected with other youth with rheumatic diseases through patient organizations and advocacy work. His perspective is critical to making sure the research is relevant and impactful for youth and their parents.
The Tool Kit
This Tool Kit was co-created with the people that matter the most – youth and their parents! The TRUST (Transition Us Together) study, led by Dr. Michelle Batthish and Dr. Karen Beattie, evaluated how a youth and parent Tool Kit (the Youth Transition Road Map and Parent and Caregiver Reference Guide found in the Tool Kit section of this website) impacts youth’s readiness to take charge and manage their own care. Their results are compelling: after families used the Tool Kit, youth showed improvements in transition readiness scores – evidence that this kind of structured, evidence-based support can make a real difference.
As you use the Youth Transition Road Map and the Parent and Caregiver Reference Guide, you’ll see the research in every checklist, recommendation, and conversation starter. This Tool Kit is the bridge that links research into practical support and guidance for everyday life – created so that you and your family can walk forward with confidence.
Participating in Research
Participating in research gives youth an important voice in shaping the programs, services, and supports designed for them. When you share your experiences and ideas, researchers gain a clearer picture of what young people truly need and the challenges they face. This helps create better resources, improve care, and make sure youth perspectives are included in decisions that affect their lives. By taking part in research, you’re helping make things better not only for yourself, but for other young people now and in the future!